Willie@4Ever!

         .                              A Covid-19 Event: Willie turned 16 April 20th 2021 My Sugga Dugga turned 16. I asked Willie did he want to learn how to drive. He answered emphatically “No!” Willie’s only interest in cars is to keep track of the comings and goings of the cars in his driveway.  There’s a methodology to that also. Is Jha gone? Where’s Nay’s car? Is La’miya and Darren here? Where’s mommy? I have my methodical answers or questions. “Is Jha gone Willie?” Willie answers, “Yes,” if she’s gone. “No,” if she isn’t, followed by, “she leaving? Is Jha leaving?” I say, … Continue reading Willie@4Ever!

Outings With Willie: A New Day

It’s the second day of a new school week. Willie woke again today saying he didn’t want to go to school. It was another morning where he was awake around 4:30 a.m. We have no idea why he wakes during these wee hours each night. He did return to sleep after about 40 minutes. This was better than returning to sleep minutes before the alarm goes off. He asked for Cheerios, which we don’t have…then he asked for chips which we did have. His choice of foods is so limited. Willie’s mom found articles regarding the effect of Autism on … Continue reading Outings With Willie: A New Day

Outings With Willie: Snacks

So Willie wanted small chocolate chip cookies and Cheez-its. It was a beautiful day and his mom and I took him to ‘The Corner Store’ a couple of blocks away. The book bag carries Willie’s ever present bears. Willie felt pretty independent taking in the sights without his hand being held. A good tip we learned for taking Willie to the store is discussing with him exactly how many items he can get. In this case he wanted 2 specific items. After the store visit we all headed home. Willie carried his own goodies. At one point he even let … Continue reading Outings With Willie: Snacks

Willie and the Unbearable Bear Crisis

Willie is out of school on injury leave right now. He has been diagnosed with Knee Effusion, or water on the knee. As near as we can tell, there is something wrong inside his knee. This, however, is a separate incident from the bear crisis. Once upon a time Willie had four bears, a big bear, a smaller bear, a chef bear and a spotted   pink bear (really, a Cheetah) but any way…   Willie started acting out the three bears story and after a while, instead of setting the chef bear aside, the chef bear was tossed into … Continue reading Willie and the Unbearable Bear Crisis

Outings With Willie

It has been a long while since I last blogged about Willie. There have been so much going on with him. We took Willie on the bus with his niece La’miya before the weather warmed up and headed for the park. After getting off the bus, we took a detour to the ice cream stand. Willie had ice cream, La’miya watched. (Secret. La’miya did taste ice cream with her mom.) We then walked to the park where Willie and La’miya both got on the swings. Willie watched a couple of guys playing catch. Then he climbed a tree. Back home, Willie … Continue reading Outings With Willie

Willie At Home

A lot has been going on with Willie. He returns to school Monday from Christmas vacation, and he will be wearing his helmet and harness. With all the bus difficulties, they’ve switched bus aides. Willie now has the bus aide he started with in September…already there has been less complaints. Compatibility is everything. I was concerned about the harness…but the bus aide had the right idea…she told Willie it was his new bus uniform and he accepted it with no issues…the helmet he wears…but…he doesn’t like it…he tried to break it…but now seems to have accepted it. Before Christmas break, … Continue reading Willie At Home

Willie At Home

Well Willie has lost his school bus privileges until after Thanksgiving. There was a problem during a meltdown, a bus aide went to the E.R. and I’m wondering where the scratches on Willie’s face came from. I do know that in Autism, a child will not feel disciplined if you hit him, he will feel attacked. I have been spending my hours between, napping for work, and working, up at Children’s Hospital. Another death, which I will write about soon. I noticed the scratches today, and then found out that he came home with them, the day he lost his … Continue reading Willie At Home

Trick or Treat Willie

So our community had a Halloween trail on in it’s business section. The day before Halloween, there was trick or treating at Willie’s school. He went as a vampire. He left his cape in school and brought home a lot of candy that he opened, but fortunately, did not eat. This was Friday, and now he needed another cape for Halloween. Willie’s mother found one cape Friday evening and a set of teeth. So Saturday, Willie had all he needed to be a vampire. I had ordered zombie make up but I  wasn’t sure if Willie would allow his face … Continue reading Trick or Treat Willie

Battle Scars

I have called my grandson Willie a warrior almost from his birth. Willie is scarred like a soldier who’s seen many battles. In truth Willie has had to fight battles. His premature birth set a tone to fight that continues to this day. Willie came home with a colostomy and a wound that needed washing and medication. Thinking about his screams of pain during those treatments still bring tears to my eyes. Willie has a fading scar on his abdomen from the reversal of his colostomy. He has a tiny  scar on his forehead from an I.V. before he came … Continue reading Battle Scars

Willie’s Back In School

Willie had been out of school for more than a month. During that time, Willie, his mom and his sisters moved in with me. Changes that were easier because this is Willie’s first home. Willie had not wanted to return to school, so I was concerned with the transition. He’d never been out of school for more than 2 weeks, now he’d have a new bus driver and a new bus aide. Willie stood at the door and said he wanted to go on a plane and go to school. But then I guess he thought about it. He decided … Continue reading Willie’s Back In School